scleroderma

Often persons with scleroderma do not know other people with the disease and may live in a state where there is no chapter of the Scleroderma Foundation or in a community where there are no support groups available. Fibrosis is due to the excess production of a tough protein called collagen which normally strengthens and supports.


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We are the only charity dedicated to improving the lives of people affected by Scleroderma and Raynauds.

. Saget was found dead in an Orlando Florida hotel room Sunday January 9 2022. Scleroderma is a long-lasting disease that affects your skin connective tissue and internal organsIt happens when your immune system causes your body to make too much of the protein collagen. Sclero meaning hard and derma which means skin.

It is thought that around 25 million people worldwide. Saget was a. The word scleroderma means hard skin in Greek and the condition is characterized by the buildup of scar tissue fibrosis in the skin and other organs.

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Link between Raynauds and scleroderma. Scleroderma is an umbrella term that refers to the various different types of this rare and complex condition. Scleroderma typically appears as a hardening and tightening of the skin and the connective tissue underneath it.

Scleroderma is a rare disease. In some people it only affects the skin but in others scleroderma goes much deeper harming your joints blood vessels internal organs and the digestive tract in addition to the. The condition is also called systemic sclerosis because the fibrosis can affect organs other than the skin.

Find support through our online community support groups and Helpline Find out more. As part of a research study this web based self-management program was designed is to help you learn about scleroderma. Scleroderma is an uncommon condition that results in hard thickened areas of skin and sometimes problems with internal organs and blood vessels.

It comes from two Greek words. The symptoms of scleroderma may vary and can look quite different in each person. Find out how scleroderma and Raynauds are associated Find out more.

Bob Sagets sister Gay Saget died on scleroderma at age 47 and he died on her birthday. The Scleroderma Research Foundation is the United States leading nonprofit investor in scleroderma research and is laser-focused on finding a cure for this rare and deadly disease. Led by the most distinguished scientific minds the SRF research program seeks to understand scleroderma by facilitating collaboration among the worlds top scientists and medical.

Hardening of the skin is often the first sign that people notice which occurs because the body is producing too much collagen. Scleroderma makes the 37-year-olds skin and joints feel stiff and it is also attacking her lungs which are becoming harder and harder. Doctors say this will only get worse.

Scleroderma is caused by the immune system attacking the connective tissue under the skin and around internal organs and blood vessels. This causes scarring and thickening of the tissue in these areas.


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